Dialog Box

Public and Patient Involvement and Engagement Working Group

Key Objective: 

The Public and Patient Involvement and Engagement Working Group has been formed to focus on engaging with patients, health professionals, and the greater public so as to increase the visibility and accessibility of ICGC ARGO research. The aim is to foster an environment in which researchers, health care providers and policy-makers understand the value of patient involvement, and patients see the value of these interactions.

Working Group Leader(s) Name Institution and contact:

Adjunct Prof. Nikolajs Zeps

Epworth Healthcare, Australia

Dr. Zeps is the inaugural Group Director of Research for Epworth HealthCare and is an Adjunct Professor at the Eastern Clinical School of Monash University.

He is a board member and the chair of the Cancer Biology Group of the Clinical Oncology Society of Australia (COSA) and a member of the Scientific Advisory Committee of the Australasian Gastro-intestinal Trials Group (AGITG). He is chair of the Primary Care Collaborative Cancer Trials Group (PC4) Advisory committee and a member of the PC4 Scientific committee. His was a founding director and board member of the Australian Clinical Trials Alliance (ACTA). He is currently Co-Chair of the Communication and Outreach Committee of the International Cancer Genome Consortium-ARGO initiative.

He was the Australian member of the Steering Committee for the Global Summit of National Ethics Committees (WHO/UNESCO) from 2010-2016. He was a member of the Australian Health Ethics Committee from 2006-2012 and the Research Committee of the National Health and Medical Research Council (NHMRC) of Australia from 2009-2015. 

Working Group Contact: 

Carol Nicol

ICGC ARGO Secretariat, United Kingdom

Email – secretariat@icgc-argo.org

Current Membership List:




Nikolajs Zeps

Epworth Healthcare


Amber Johns

Garvan Institute for Medical Research


Mark Lawler

Queens University Belfast


Rita Lawlor

University of Verona: Italian Ministry of Education, University and Research


Corrie Painter

Patient Advocate, Broad Institute


Lesley Stephen

Patient Advocate


Julie Wilson

Ontario Institute for Cancer Research


Justin Noble

Ontario Institute for Cancer Research


Yoon-Jung Chang

National Cancer Control Institute

South Korea

Ilhak Lee

College of Medicine, Yonsei University

South Korea

Carol Nicol

Secretariat, ICGC ARGO